The one person I have control over is me. I’ve learned some pretty hard lessons this last year I’m surprised I made it out with my sanity. I’m going to let go of the last horrible rotten year and leave it in the past. I will carry with me those lessons learned. They are the only stow aways that are permitted to come with me into 2011.

I will do everything in my power to kick myself. I’m going to kick my ass out of the pity parties that have been coming around more and more it seems. I’m going to get myself out from underneath this cloud of negativity. I’m not going to be afraid to fail – because i will from time to time and I can grow from it – at least I would have tried.

My first leap into making this the year of Yolospat has to do with my better half. My best friend and soulmate. My ex-husband. I know I know, you’re all thinking, “You’re best friends with your ex-husband?!” Well, we are a rare breed I suppose. In fact, we have better communication skills now with each other than when we were married. I would have not made it through this last year without him. It’s been a year and almost 4 months since I saw him last so this month I’m going to fly out to Georgia to see him. We are both excited, and it gives us something to look forward to. We never got to say goodbye when we made – in my opinion – too rash of a decision. Growth and good changes between us have happened, and also individually that couldn’t have happened had we still been together. Brendan is what smiles are made of, and I can’t wait to see him. We have agreed that I would bring his xmas box with me instead of shipping it so that we can open his presents together.

I have a few projects lined up for this next year. I will be focusing on my writing this year. This includes my blogs, articles, journaling, poetry, freelancing, short stories and a novel I’m working on at the moment. I’m also going to be focusing on my artwork and bring my portfolio into existence. I’m going to try and volunteer at the humane society. I also have house projects lined up, like painting a few rooms, my fence and my deck. I need to put the art studio back together too. I think I might bring the studio inside and put it int he basement for the winter so I won’t have to worry about heating the garage (which is detached from the home).

I have to remember to pace myself. Living with Fibromyalgia is a very tricky balancing act. If I have a good day and I use up more energy than I should have I’ll be in bed for the next 2 days exhausted. I have to remember that I can only do so much and the better I pace myself the greater my “good days” will be. I also want to talk about Fibromyalgia this year in detail to spread the word and to debunk the myths. I’ve talked about it briefly from time to time but it’s a very hard medical condition to understand. I want to help people understand, so anyone has questions please feel free to ask.

My Writer’s Market book came in the mail yesterday. It’s what every writer needs in reference to publishing, agents, writing idea’s, tips and tricks. You name it, it’s got it. It also has the updated 2011 list of all agents and houses, including what they specialize in and what they are looking for. I also got the Short Story Writer’s Market book too.

I hope everyone makes this year a better year. I know I am.

I’m finally in my new house (I’ve been here for a few months actually) and life in my dream home is going great. The neighborhood I’m in is exactly where I wanted to be, and I couldn’t begin to explain how in love with my house I am. It’s on a fairly large lot, built nearly 100 years ago. If only these walls could talk. Most of the house is original, like the doors and the beautiful hardwood floors throughout both floors except in the master bedroom. The back yard is so big and Jonah and Molly can run and play as long as they want. I find out something new about this house every day. There are so many nooks and hidden little doors that go to other places in the house. I even found the original skeleton key that fits all the inside doors!!!! It’s been lost since the first owners had the house. I haven’t gotten to fix up my art studio out back yet but that’s a project I have planned for the summer. What I really enjoy is the spa room with the built in hot tub. It’s really been good for the fibro and back pain. I also go swimming twice a week with Tracey which really helps too.

I’ve been busy lately with my best friend Carrie and her little sister Tracey (and yes, you too Michael). I don’t know what I would do without them. They are a constant in my life, and I in theirs. They are like family to me. We took this picture just yesterday.

I’m heading to Texas in a little more than 6 hours so I can see Tiffany and my two nieces. I haven’t seen those cute little faces for about 2 years and I look forward to lots of hugs and snuggles. I’ll be staying a week and I’m looking forward to the warm weather as it just snowed last night after being 70 degrees the day before. That’s Colorado weather for ya. I caught a great shot of the sun setting over the mountains the other day. I really did miss Colorado, more than I had realized.

I’m still working on my art just as passionately as before but I’ve been slacking in taking pictures of my progress. Hopefully when I get back I can scan them all proper. I’ve also been working a lot on my music lately, another passion of mine that came back to me after a decade long hiatus. My writing is going great too, and along with that I’ve acquired a new love for fountain pens both modern and antique. Again, I’ll have to talk more about that when I return from my trip.

Brendan is doing great, he finally got full-time status at his job and got his own department. I’m proud of his progress, and he’s always there when I need a pick me up.

I’m learning new patterns with my crocheting too which has been a fun experience. I have so many projects lined up that I’m busy all the time. Busy is good and I’ve been pacing myself so I don’t get too worn out.

I know this is a quick update and there’s so much more to mention but time isn’t on my side today and I still need to finish packing. Depending on activities in Texas I’ll try to make updates when I can.

Leavin’ on a jet plane ……

I wanted my marriage to last forever. Doesn’t everyone when they wisk off to their honeymoon? Time changes people, left over baggage changes people. So instead of staying in an unhappy marriage, I got out. I did that to give myself a chance at happiness yet I’m the most depressed I’ve ever been. Maybe until now, until I really thought this through, I did everything possible. I shouldn’t be beating myself up, but patting myself on the back because I wasn’t a perfect wife, but I was a damn good wife.

Everything has to do with attitude. Mine needs a huge overhaul. It would not only help my fibro, but my outlook on life, my future life. I don’t know what it will be like, but focusing on the darkness that may become doesn’t do me any good but will only lead to a self fulfilling prophecy in which my future WILL become that darkness. If I focus on the good things, my writing, my willingness to get better then my future looks a lot brighter than I ever thought it might be.

Only way I know this is I have good friends who have been there every step of the way, like Camille, like Tiffany, and especially my Mother who I know beyond any doubt, loves me unconditionally.

I don’t have to focus on the fact that I’m part of the 50% that failed, but I’m part of the 50% that might have made the right decision so that I can leave room for happiness and joy.

I have a doctors name on a piece of paper sitting here in front of me that has helped so many people I know personally. All I have to do is make the call. I haven’t done that yet because I was stuck focusing on never getting better. I’m going to call this doctor today, and start the journey of getting better because at this point I can’t get much worse. I don’t want to be bedridden next month and that’s where I’m headed. I have to stop this disease in it’s tracks and try to live while I have the ability.

Today, I want to try. I’ll have my days where my goals are fuzzy especially when that day is a bad fibro day, but if I can go back and read this post the haziness might clear a little even if the sun doesn’t shine.

I can do this ..

Anyway, Tiffany’s father said that these afghans could be family heirlooms. That made me feel good. Like, really good. I just do it because I love my two little girls

It’s been a very emotional day, especially between my Mother and I. She’s trying to help and as much as I know this it’s been hard.

I even had a talk with my Aunt Donna today on the phone and she said something to me that she’s never done in my life. She said I need to get over my anger. She told me to write down everything that was making me angry, put it in box and keep it there and “GET OVER IT!!!!!!!!!”. My Aunt Donna suffers from Fibromyalgia too which make the whole conversation surprising. So I did that. I wrote down everything that I was angry at, and I put it in a box and I put that box up on the shelf. It actually helped. Then came the tears, the “I’m sorry” and I accepted how rotten I’ve been over the last few days. All the grieving and mourning I haven’t done is on hold and put aside. I finally found my phones that were safely tucked away in my purse and I heard from my Uncle Joe and Aunt Martha. There is something about their words, and them calling that tears me to pieces because I love them so much and for so many years I thought they stopped caring.

Fact is, I’m not getting better. I’m still hacking up green phlegm but not as much as before. Its like it’s getting better and breaking up but it’s going deeper into my lungs. I’m going to bed here shortly so we’ll see how I am tomorrow. I still need to order my prescriptions and pick those up tomorrow but I’ve been asleep all day and I’m tired of Mark invading my dreams.

I’m extremely scared for my job. What if they don’t take me back? What if … what if …

I found something I wanted to share again because my guild master had asked for it. It will be under the read more part so this entry doesn’t take up a million pages.

Letter to people without chronic pain:

Having chronic pain means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about chronic pain and its affects, and of those that think they know, many are actually misinformed.

In the spirit of informing those who wish to understand:

These are the things that I would like you to understand about me before you judge me.

Please understand that being sick doesn’t mean I’m not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit, sometimes I’m not much fun to be with, but I’m still me– stuck inside this body. I still worry about school, my family, my friends, and most of the time, I’d like to hear you talk about yours too.

Please understand the difference between “happy” and “healthy.” When you’ve got the flu, you probably feel miserable with it, but, I’ve been sick for years. I can’t be miserable all the time. In fact, I work hard not being miserable. So, if your talking to me and I sound happy, it means I’m happy. That’s all. It doesn’t mean that I’m not in a lot of pain, or extremely tired, or that I’m getting better, or, any of those things. Please don’t say, “Oh, you’re sounding better!” or “But, you look so healthy!” I am merely coping. I am sounding happy and trying to look “normal.” If you want to comment on that, you’re welcome.

Please understand that being able to stand up for ten minutes doesn’t necessarily mean that I can stand up for twenty minutes or an hour. Just because I managed to stand up for thirty minutes yesterday doesn’t mean that I can do the same today. With a lot of diseases you’re paralyzed and can’t move. With this one, it gets more confusing everyday. It can be like a yo yo. I never know from day to day how I am going to feel when I wake up. In most cases, I never know from minute to minute. This is one of the hardest and most frustrating components of chronic pain.

Thats what chronic pain does to you.

Please understand that chronic pain is variable. It’s quite possible (for many, it’s common) that one day I am able to walk to the park and back, while the next day I’ll have trouble getting to the next room. Please don’t attack me when I’m ill by saying ” You did it before” or “oh I know you can do this!” If you want me to do something, ask if I can. In a similar vein, I may need to cancel a previous commitment at the last minute. If this happens, please do not take it personally. If you are able, please try to always remember how very lucky you are to be physically able to do all of the things that you can do.

Please understand that the “getting out and doing things” does not make me feel better, and can often make me seriously worse. You don’t know what I go through or how I suffer in my own private time. Telling me that I need exercise, or do some things to “get my mind off of it” may frustrate me to tears and is not correct. If I was capable of doing some things any or all of the time, don’t you think I would?

I am working with my doctor and I am doing what I am supposed to do.

Another statement that hurts is: “You just need to push yourself more, try harder.” Chronic pain can affect the whole body or be localized to specific areas. Sometimes participating in a single activity for a short or a long period of time can cause more damage and physical pain than you could ever imagine. Not to mention the recovery time, which can be intense. You can’t always read it on my face or in my body language. Also, chronic pain may cause secondary depression (wouldn’t you get depressed and down if you were hurting constantly for months or years?), but it is not created by depression.

Please understand that if I have to sit down, lie down, stay in bed, or take these pills now, that probably means that I do have to do it right now. It can’t be put off of forgotten just because I’m somewhere or I in the middle of doing something. Chronic pain does not forgive, nor does it wait for anyone.

If you want to suggest a cure to me, please don’t. It’s not because I don’t appreciate the thought, and it’s not because I don’t want to get well. Lord knows that isn’t true. In all likelihood if you’ve heard of it or tried it, so have I. In some cases, I have been made sicker, not better. This can involve side effects or allergic reactions. It also has includes failure, which in and of itself can make me feel even lower. If there was something that cured, or even helped people with my form of chronic pain, then we’d know about it. There is worldwide networking (both on and off the Internet) between people with chronic pain. If something worked, we would KNOW. Its definitely not for lack of trying. If, after reading this, you still feel the need to suggest a cure, then so be it. I may take what you said and discuss it with my doctor.

If I seem touchy, its probably because I am. It’s not how I try to be. As a matter of fact, I try very hard to be “normal.” I hope you will try to understand my situation unless you have been in my shoes, but as much as possible, I am asking you to try to be understanding in general.

In many ways I depend on you — people who are not sick. I need you to visit me when I am too sick to go out. Sometimes I need you to help me with the shopping, cooking or cleaning. I may need you to take me to the doctor or to the store. You are my link to normalcy. You can help me to keep in touch with the parts of my life that I miss and fully intend to undertake again, just as soon as I am able.

I know that I ask a lot from you, and I thank you for listening. It really does mean a lot.

You know why all this is happening? Because some fuckhead felt like coming to work sick (I know of one of them specifically who had bronchitis and girl, you and me are going to have words because I heard at least 5 people tell you to go home because they didn’t want to get sick) because she didn’t want to lose her job. Not once did she think, oh wait, we have people in the office who are on remission from cancer, or people with auto-immune diseases like Fibromyalgia who are magnets to this shit. That’s not even the bad part. This shit put me in the hospital and she’s sure not paying my hospital bill. I’m fairly certain they will have to put someone in my place temporarily until I get back (as my boss promised if I had to ever take medical leave, which, I guess is a test now because my hands are tired. Completely) So because this bitch didn’t want to lose her job or whatever, I got what she had and I when I was in the ambulance on the way to the hospital overhearing the EMT say “Ah shit, she’s dropped below 70, upgrade this to critical, stay with me now Jenny, come on Jenny, stay with me Jenny .. can you see me … grab my hand Jenny I was remembering her selfish little words. Pffttt, I don’t want to lose job. I was hoping not to die at that point.

So with my permanent lung damage (like I need more) I’m going to have to call up my boss tomorrow and explain to him that, yes I could do the job. I’d be in right this very fucking second doing it if they would make sure that sick people did NOT FUCKING COME TO WORK. Now I have hospitals bills, I’m strapped to oxygen to keep me alive seeing this promotion slip out of my fingers so fucking fast I didn’t even get to taste victory yet. I’m sooooooooo mad. I’m soooooooooooo pisssed. I had zero choice in this. ZERO.

After the 13th, if they let me work from home I could do that but it’s hard to manage a team that you don’t even see every day. One other person’s wrong choice cost me this. I’m not about revenge, I’m not about payback, all that is bullshit. I am about bringing into prospective what people might have missed tho.

Anyway, my doctors card and me. The good news is I lost 3 pounds past my 50 lbs for the first of the year. So, thats 53 pounds in 59 days. There it is, this is almost a death sentence to me. Going to work actually MAKES me feel better so it’s going to be a long 10 days of getting cabin feather. I do have 5 portable tanks with me but just one of those portal tanks only lasts 4 hours. As for the poor me, I’m getting daily nose bleeds from a dry noise.

The only good thing about the whole experience was I got to walk talk and mingle with this harp player who comes and just plays healing music to everyone who wanted to listen. My roommates thought Jerry Springer was more interesting.

I’m really disappointed in my doctor at the Fibro & Fatigue Center. I found out that he read some of my labs wrong (have I mentioned this yet? I don’t remember) and so I’m off most of the medication he had me on. Well, I’m off at least 7/8ths of the medication I was before and I’m already noticing a change and I’m already noticing that I am feeling better. Plus, the nurses at the Fibro & Fatigue center here in Atlanta have been dropping the ball left and right. My doctor wanted to see every 3-4 weeks and he’s booked solid for the next 3 weeks which means I won’t see him for at least 2.5 months which means, I’m going to be running out of medication .. and FAST. Hopefully my new doctors will work out and I can make an easy transition. Oh, and get this. Dr. C at the Fibro & Fatigue Center treats all his patients with the same plan of action so no wonder I wasn’t getting better. I’m just really disappointed in the center when at first it gave me so much hope. Maybe I was grabbing at the last rope I thought was out there, I don’t know. I just have to find what works and I know it’s going to be a frustrating battle and my patience will tested big time, well, sort of like now.

So with everything going on, having some severe medication changes, getting sick, being way over-emotional, fighting with the hubby its affected my performance at work and I only hope that they will find some sort of empathy and be patient with me too. The only thing that hasn’t gone away is the pain, so I’m still dealing with that. It’s hard for people to understand because I look well but everything under my skin, including my digestion issues and IBS is a complete mess. I just need all this to come together, and the sooner the better. Not only for me, work, but for family friends and everyone else that is involved. I’m trying my hardest to hang in there, I really am.

Went to see “Hotel for Dogs” tonight. It was one of those cheesy Disney stories, but it was pretty good. Nice and light and funny. I knew the ending as soon as it began but .. I thought it was pretty good. Good, no, maybe just cute. It was cute.

I gotta go to bed now, I’m tired.