.:: Yolospat ::.

A few items are on the plate this evenings (er, mornings, how’d that happen so fast? So little time so much to do) blog post. First off, World of Warcraft’s Cataclysm finally has a release date! December 7th. That’s a few weeks after I started playing WoW back in 2005. Wow, it seems like yesterday. I will probably pre-order. I wouldn’t be able to stand in the huge long lines. I’m getting too old or something. So what if I get the game a day late? Amazon is good about sending the game out so you get it on the release day. I haven’t played WoW for weeks, but I think it might catch up once Cataclysm will pick up my gaming time.

I’ve been gearing up for NaNoWriMo!! NaNoWriMo stands for National Novel Writing Month where one has to write 50,000 words of their novel from November 1st through November 30’s. This will be my first year doing it. I’m excited. You can follow my progress at My NaNoWriMo page. I’m writing a lot of short stories this month, and practicing on some writing prompts I have been collecting over the last year since I missed it last year.

Speaking of missing NaNoWriMo last year, sigh. This is the month of October and in 4 more days will be the anniversary of the day I got married. It’s almost going to be a year since I’ve seen my husband ex-husband. It doesn’t feel possible, it feels like a decade. And the worst part about it is through all the hustle and bustle of getting packed and moved, we never got to say goodbye to each other. The other worst part is that I don’t know when I will see him again. I miss him more than any word I can think of in the English language. Its emotional agony, only worse. I lost my soul-mate and my best friend all at the same time. Adjusting to being a single female living by myself is an adjustment I keep fighting subconsciously. I feel scared much of the time, especially at nights knowing he’s not here makes everything seem empty, but through my art, writing, reading, crocheting, and now knitting, I’m trying to keep myself as busy as possible. I’m so grateful for our telephone calls nearly every night, and I’m thankful we keep in constant communication and we’ve both grown from this experience, and he will always be my soul-mate no matter what happens in the future. The distance is so hard though, just so hard. When incidents happen like they did with “Lance” a week ago it makes me wish I were still in Georgia.

Jonah is a lot better. His face is healing at a remarkable speed. The scabs are starting to fall off and new skin is fresh and pink underneath. My friend David got a new puppy. A miniature Chihuahua named taco. I was scared at first that taco and Molly would butt heads for dominance but it was amazing how fast she took to him. This is the first time she’s meeting a dog smaller than her, it was so cute. David made a funny joke. He said if Molly and Taco had puppies, they would have tamales. Hehe. Pictures coming soon of Taco. I’m also building a computer for David that he can use now that he’s gone back to school and kicking ass with his grades.

I’ve been using my iPad a lot for writing out my short stories and my writing exercises. For some reason I’ve gotten a talent for tying on it. It actually makes me write even more than I do already. I found a program on the iPad called Manuscript that connects to DropBox so I work on it no matter where I am.

I have been very negative lately about my divorce. Like the 50% that make it, I started and ended keeping true to my vows, yet I’ve been beating myself up for a failed marriage in which I as a person did not fail.

I wanted my marriage to last forever. Doesn’t everyone when they wisk off to their honeymoon? Time changes people, left over baggage changes people. So instead of staying in an unhappy marriage, I got out. I did that to give myself a chance at happiness yet I’m the most depressed I’ve ever been. Maybe until now, until I really thought this through, I did everything possible. I shouldn’t be beating myself up, but patting myself on the back because I wasn’t a perfect wife, but I was a damn good wife.

Everything has to do with attitude. Mine needs a huge overhaul. It would not only help my fibro, but my outlook on life, my future life. I don’t know what it will be like, but focusing on the darkness that may become doesn’t do me any good but will only lead to a self fulfilling prophecy in which my future WILL become that darkness. If I focus on the good things, my writing, my willingness to get better then my future looks a lot brighter than I ever thought it might be.

Only way I know this is I have good friends who have been there every step of the way, like Camille, like Tiffany, and especially my Mother who I know beyond any doubt, loves me unconditionally.

I don’t have to focus on the fact that I’m part of the 50% that failed, but I’m part of the 50% that might have made the right decision so that I can leave room for happiness and joy.

I have a doctors name on a piece of paper sitting here in front of me that has helped so many people I know personally. All I have to do is make the call. I haven’t done that yet because I was stuck focusing on never getting better. I’m going to call this doctor today, and start the journey of getting better because at this point I can’t get much worse. I don’t want to be bedridden next month and that’s where I’m headed. I have to stop this disease in it’s tracks and try to live while I have the ability.

Today, I want to try. I’ll have my days where my goals are fuzzy especially when that day is a bad fibro day, but if I can go back and read this post the haziness might clear a little even if the sun doesn’t shine.

I can do this ..

I’ve been going through a tremendous tough time as of late, and for lack of a better term..I’ve never been so down in the dumps. Everything is a problem, everything is broken, I don’t feel good, my heart is broken, this divorce is hard, etc etc etc and just typing it makes me want to cringe and walk away the first exit I see because I don’t even want to hear all that whining myself.

What I realized today, it’s not getting me anywhere. It’s only making me worse and worse, and in turn it’s making my fibro as bad as it’s ever been. I can blame the -20 to -50 degree weather as of late, but I would be lying if I didn’t say it was my very own attitude thats keeping me in a pit of darkness.

Until this morning. This morning I had a small victory. I haven’t been able to keep down multi-vitamins for years. They come right back up within 30 minutes of taking them. I’ve tried every kind, from regular for men and woman, to woman only and I finally gave up.

Then my Aunt Donna suggested I try the children’s Flintstones Gummy Bear multi-vitamins with immune support and without iron. She told me to take two in the morning with breakfast.

:: drum roll ::

It’s been two hours and I haven’t had any problems at all. I also want to eat the whole bottle. It’s like eating candy for breakfast. Speaking of breakfast, I thought it would make my Mom’s day if I made breakfast in bed for her. She said that was the first time anyone has ever done that. I’m happy she was happy.

So what I have learned in only the first few hours today, a different way of thinking has already brightened my day and make me inspired and motivated. I need to remember to look at the bright side, instead of the doom and gloom. To find that middle balance.

My best friend Camille sent me a link today that I can stamp as fact with my Jenny stamp for being true.

It was about the lack of mens commitment when their wife gets a serious illness. You can find it here.

When I got diagnosed with Fibro a lot of things changed in my marriage, and not for the good. It was around that time Brendan started to distance himself from me. I noticed he would spend more time in the basement, and less quality time with me. On my bad days he would take out his frustrations of my illness on me because he said he didn’t have anyone else to talk to. I noticed that I was walking on egg shells around him more, and his drinking gradually became more frequent.

It got to the point where we were not spending any time together, those egg shells I was walking on became glass, and the drinking had become a nightly occurance.

Toward the end of our marriage, I asked him if we could spend one night a month together. He said it was a lot to ask for and he didn’t know if he could commit to it because of work (he works part-time at Publix)

I guess a person just knows when it’s over and it was that moment I knew I had to get out of that toxic environment, and that my marriage was over.

Brendan and I signed the divorce papers on the 6th and turned them into the court. I have to come back January 7th to go to court to finalize the divorce. In Colorado you don’t have to go back to court. Sigh.

This has taken more than a toll on me. There were things said tonight that touched the very core of my heart. Not in a good way. It questions my very soul to the post important people in my life. The most important person in my life. I’m not sure what to do, or how to fix it. I thought things were completely opposite than the way they were presented. This goes back decades, even longer. I question who I really am as a person who has too big of a heart and so much love to share and I thought everything was understood and ok, but they aren’t. My very soul is questioned. Love is questioned.

I’ve been doing the right thing ever since 2003 and being the responsible adult doing the right thing, making the right decisions, and loving my friends and family for everything, but .. do they feel it like they deserve? It makes me feel that I’m damaged, that I have been, that it’s permanent. These things I will never forget tho they have been forgiven.

When games over ride a friend in need, where does one go. I don’t know anymore. When there is noting left to say, it’s simple. There is nothing left to say.

I never wanted this divorce. I did everything I could so it wouldn’t come to that, but it has. It’s not only hurting me, it’s hurting my Mom too and I feel that’s somehow my fault. I hate it. I hate all this.

Solution of being a hermit is starting to sound pretty good. I can’t hurt anyone that way. After tonight, I’m at my own breaking point, if it hasn’t happened already. Words are daggers, and they went straight into my soul, and hearts can be repaired. But the soul is a different thing altogether. Souls can just die. If my soul would be a person, it should be in ICU, but there is no such thing. It screams, burden. That’s stamped on my forehead for all to see. It’s what my soul screams and I’m so ashamed. There is no way of coming back from that.

This one was the worst yet. Better luck next year kid.

I’ve been sleeping for the majority of the time now that I’m not taking my thyroid meds. I think my energy has depleted at least 75% because of it. Something I’m going to point out to Dr. S when I see him next week.

My pulmonary doctor did my allergy test. There were about 80 different things they were testing for. If it wasn’t so ironic and I didn’t already sort of know it anyway, the one and only thing I’m allergic to is my cats, out of 80 different things. That’s good since I’m in allergy america.

I have tell a funny about my husband. They take me out to do a breathing test on one of their machines so as I’m heading back to room 8 where they placed us in the first place I thought I smelled something foul. It got stronger the closer I got to my room and when I walked into my room, BAM.

“Did you fart?
“About a min after you left, you can still smell it?
“You can smell it all the way out in the hall!!!!!!!”

So here I am with two magazines wafting the air, hoping the smell either goes away or just gives up and stops stinking.

I saw my doctor coming so I put away the magazines really fast and sat on the bed. He walks in, looks around and says,

“Um, lets use the room next door, I’ll get one of the nurses to do your allergy test”

My husband cleared a room. With his butt. I was so embarrassed at the time, but the minute I walked out I was laughing. I told him he couldn’t do that and to go to the bathroom next time. He’s the only one I know who can have scentless farts so you never know what your going to get. Not that day. That day, he literally cleared a room.

They did schedule an endoscopy on me for this Thursday to look at the blockage in my airway and take a possible biopsy. They will put me out for a small time and my boss told me if I need to take the day and work from home that would be fine. I told him we’ll see.

Yesterday the majority of us went home because the A/C wasn’t working and it got to be 90 degrees in the office. I was sweating like a whore in church. I hope they have it fixed today.

Not sure why I’m up early but it feels good and I slept in the recliner last night so I don’t have any sort of backache. I give my MRI scans to my pain doc next week. I want to try and scan them all first tho, even if they are a little big. What’s a good stitching program?

My Mother made the appointment and unlike me she likes appointments in the morning. I usually try to shoot for mid afternoon or late afternoon. We had horrible rain and wind storms this morning to the point there were street lights out at the most busy intersections.

When it rains, people here in Georgia people loose their ability to drive. Its like they reverted back to the first time ever got in a vehicle for the first time accidently putting it into reverse and driving through the garage door, as their parent in the passengers seat tries not to blow a gasket knowing it was only a mistake.

You’ll see drivers driving 15 mph and others (usually in trucks) that are going 15-20 miles over the speed limit slowing down only when they start hydroplaning.

The doctors office was right above the Lung Clinic that I go to. We were 15 minutes late due t the weather and the street lights being being down. We also had to wait for a train. I filled out all the necessary paperwork and nearly 2 hours later I actually got to see the doctor.

Even tho my labs showed my thyroid was low she wants me to stay off my thyroid meds. She said I would probably gain all my weight back that I lost and she wants to get a blood test in two weeks. Right there was enough to make me upset. Nothing has worked to help me lose weight except this so I wasn’t thrilled with this idea. I started crying and she turned to my husband and said “since she isn’t comprehending what I’m saying can you write this down” like I wasn’t even sitting there in the same room. I’ve lost so much weight and it feels damn good. When you have 65 pounds less of your body and knees it’s indescribable. Thinking of gaining that back just isn’t remotely ok with me.

After I gained my composer a bit I started asking her the questions I had planned to ask her before I went in. She didn’t answer a single one of them and told me come back in 2 months to do some blood work and see where we were with things.

I think I saw her for about 10 minutes. Maybe 15.

As I passed b the desk to check out I gave them my slip and when the nurse went to schedule my appointment I told her I wasn’t coming back. Once I got home I called my PCP and told his nurse of my experience and they suggested another doctor for me to see.

Its rare to see a doctor with any type of bedside manner anymore (or nurse for that matter, not talking about you Hillary Gayle, your going to be the best nurse ever!)

So, I’m back to being extremely discouraged and frustrated. How much longer can I do this?

I’ve been having some really horrible sleeping problems. My sleep meds have decided to quit working on me giving me nothing left to aid in the sleeping process so after a few days of that the body starts giving into the exhaustion to where I was finding myself asleep at my desk (which is quite comfortable to sleep at btw).

Finally, I was able fall asleep and it took a full 24 hours for my health bar to regain its full strength. The bad thing about this is it’s 3:30am so there isn’t much luck going back to sleep after I’ve already woken up. I tried, didn’t work.

I did however take another fall in the bathroom. I think my shoes were still wet from being out on the back porch trying to get my dog to come back inside I landed square on my right knee. For people with Fibro, falling has to be the worst. It’s not just a fall. It’s a total body flare up so not only does my knee hurt but my body feels like its just been through the meat grinder. Ouch.

My plan is to work early and go see my new doctor at 1pm. I hope he helps. I’m really tired of this doctor hopping. Mom keeps telling me there is a doctor out there that will help me and after a year my 8 ball is saying that things are looking grim. I’ll keep trying. What else can I do at that point?

I’m looking forward to the 31 days to a better blog challenge.

Ok, I admit I’m a coward again. My MOTHER actually called and made the appointment and “got a feel” for the place. I know I’m lame in having my Mother call but at this point my anxiety level shoots through the roof when it comes to doctors. This last year I have been to doctor after doctor who hasn’t been able to help me and I know the poem I wrote was pretty emo, but I’m really tired of living a life with so much intense pain where I can’t even dress myself all by myself, or take a shower without my husband standing in there making sure that I don’t fall, or holding the shower head for me because my arms aren’t strong enough to do it. I’m 30 years old living like a 90 year old who is 2 feet away from a nursing home.

THIS SHOULDN’T BE MY LIFE!

But it is. This is how it is day in and day out. The basics of caring for myself have been taken away for me. It makes me angry in so many ways that’s it’s changed who I am. Luckily my husband still loves me and supports me 100%

When I was in the hospital a few weeks ago my Mother was picking up some meds from CVS. My Mother is the type that talks to EVERYONE, god love her. It used to be annoying as a kid because I had ADD so bad I wanted to go go go, not wait until Mom stopped talking to people. Well, this talk she had with this woman at CVS her experience and struggle was shockingly similar to mine. She had gone to all the doctors I had until she found the right doctor to help her. She gave my Mother his name and where he was located so both Mom and I googled him this morning. He sounded wonderful on his web site. There was even a link that said “Update me about your condition” like he really cared how his patients were doing. You could imagine my shock at that. When I called the office I talked to the receptionist. I explained to her about my fibro, arthritis, and hypoxemia and asked her if this doctor had any experience dealing with that. Her answer was “oh yes Ma’am” .. then I asked the hardest question of all. I told her I had really bad luck with doctors just pushing pills at me without actually fixing the underlying issue. She said “he’s not like that. If he can’t fix what is wrong or if you are too severe of a case he will tell you who can”

SOLD!

I’m trying not to keep my hopes up. I’m trying but my hopes are high at this point and I just don’t want there to be any sort of let down. I keep thinking every doctor I see is going to be my miracle and every doctor thus far has been my downfall.

So here’s to new found hope. Oh, I forgot to say, he’s getting me in THIS monday. That’s fast. Wish me luck.

Don’t you hate when you wait so long just to see a doctor who comes in, diagnosis you or fixes whatever it was you came in for and he’s walking out the door 3 minutes later telling a short mild lame joke.

I had such high hopes that my new Rheumatoid doc would be “The One” who would fix me and make me all better. He gave me 5 cortisone shots from the top of my spine all the way down to the end of it since it’s been such a huge pain source for me lately, told me my labs looked fine and was nearly out the door before I’m like, um, wait. I was just in the hospital 3 weeks ago for Bronchitis which caused Hypoxemia in which I’m STILL on oxygen 24/7 for .. I definitely have some questions. So we went through my labs he did a month ago and every question I asked he danced around and basically didn’t answer. Even the simple yes/no questions. Then he changed my meds on me without us talking about it and I’m slapped an appointment card and rushed out the door.

Another what I like to call “Band-aid” Doctor. They slap a band-aid on you and throw you some pills without actually fixing the underlying issue. Pisses me off. I’m so frustrated/discouraged/angry. Is there any doctor out there that is actually helpful anymore?

I’m really bummed about this. I walked out of there feeling worse than when I went in (not every day you have 5 needles in your spine, ouch).

That’s the mode I’m in. I’ve been asleep more than I have been awake in the past 24 hours and I’m ready for sleep again, already. My energy is extremely low because I haven’t been eating properly. I’m craving red velvet cake for some reason, but I managed to keep down some yogurt.

It’s been a very emotional day, especially between my Mother and I. She’s trying to help and as much as I know this it’s been hard.

I even had a talk with my Aunt Donna today on the phone and she said something to me that she’s never done in my life. She said I need to get over my anger. She told me to write down everything that was making me angry, put it in box and keep it there and “GET OVER IT!!!!!!!!!”. My Aunt Donna suffers from Fibromyalgia too which make the whole conversation surprising. So I did that. I wrote down everything that I was angry at, and I put it in a box and I put that box up on the shelf. It actually helped. Then came the tears, the “I’m sorry” and I accepted how rotten I’ve been over the last few days. All the grieving and mourning I haven’t done is on hold and put aside. I finally found my phones that were safely tucked away in my purse and I heard from my Uncle Joe and Aunt Martha. There is something about their words, and them calling that tears me to pieces because I love them so much and for so many years I thought they stopped caring.

Fact is, I’m not getting better. I’m still hacking up green phlegm but not as much as before. Its like it’s getting better and breaking up but it’s going deeper into my lungs. I’m going to bed here shortly so we’ll see how I am tomorrow. I still need to order my prescriptions and pick those up tomorrow but I’ve been asleep all day and I’m tired of Mark invading my dreams.

I’m extremely scared for my job. What if they don’t take me back? What if … what if …

I found something I wanted to share again because my guild master had asked for it. It will be under the read more part so this entry doesn’t take up a million pages.

(more…)

No. I didn’t get fired. I have been in the hospital for the last 4 days however with bronchitis, pneumonia and sever asthma problems due to each. I am on strict home oxygen for a straight month. I am not allowed to return to work until the 13th :: glares at doctors note :: and only THEN will it be decided if I get to return for the remainder of the month while on oxygen.

You know why all this is happening? Because some fuckhead felt like coming to work sick (I know of one of them specifically who had bronchitis and girl, you and me are going to have words because I heard at least 5 people tell you to go home because they didn’t want to get sick) because she didn’t want to lose her job. Not once did she think, oh wait, we have people in the office who are on remission from cancer, or people with auto-immune diseases like Fibromyalgia who are magnets to this shit. That’s not even the bad part. This shit put me in the hospital and she’s sure not paying my hospital bill. I’m fairly certain they will have to put someone in my place temporarily until I get back (as my boss promised if I had to ever take medical leave, which, I guess is a test now because my hands are tired. Completely) So because this bitch didn’t want to lose her job or whatever, I got what she had and I when I was in the ambulance on the way to the hospital overhearing the EMT say “Ah shit, she’s dropped below 70, upgrade this to critical, stay with me now Jenny, come on Jenny, stay with me Jenny .. can you see me … grab my hand Jenny I was remembering her selfish little words. Pffttt, I don’t want to lose job. I was hoping not to die at that point.

So with my permanent lung damage (like I need more) I’m going to have to call up my boss tomorrow and explain to him that, yes I could do the job. I’d be in right this very fucking second doing it if they would make sure that sick people did NOT FUCKING COME TO WORK. Now I have hospitals bills, I’m strapped to oxygen to keep me alive seeing this promotion slip out of my fingers so fucking fast I didn’t even get to taste victory yet. I’m sooooooooo mad. I’m soooooooooooo pisssed. I had zero choice in this. ZERO.

After the 13th, if they let me work from home I could do that but it’s hard to manage a team that you don’t even see every day. One other person’s wrong choice cost me this. I’m not about revenge, I’m not about payback, all that is bullshit. I am about bringing into prospective what people might have missed tho.

Anyway, my doctors card and me. The good news is I lost 3 pounds past my 50 lbs for the first of the year. So, thats 53 pounds in 59 days. There it is, this is almost a death sentence to me. Going to work actually MAKES me feel better so it’s going to be a long 10 days of getting cabin feather. I do have 5 portable tanks with me but just one of those portal tanks only lasts 4 hours. As for the poor me, I’m getting daily nose bleeds from a dry noise.

The only good thing about the whole experience was I got to walk talk and mingle with this harp player who comes and just plays healing music to everyone who wanted to listen. My roommates thought Jerry Springer was more interesting.

I felt better today than I have for a week and a half. I’m in the middle of changing and switching some of my medication around which has resulted in horrible side effects making me feel completely horrible. Hopefully I’m on the up-swing at this point. The next hurdle is meeting my new doctors on the 23rd of this month in which my Mother is flying over for. Now that I know I have Fibromyalgia along with Rheumatoid Arthritis I will be seeing a husband and wife team of Rheumatologists that have experience in both diseases.

I’m really disappointed in my doctor at the Fibro & Fatigue Center. I found out that he read some of my labs wrong (have I mentioned this yet? I don’t remember) and so I’m off most of the medication he had me on. Well, I’m off at least 7/8ths of the medication I was before and I’m already noticing a change and I’m already noticing that I am feeling better. Plus, the nurses at the Fibro & Fatigue center here in Atlanta have been dropping the ball left and right. My doctor wanted to see every 3-4 weeks and he’s booked solid for the next 3 weeks which means I won’t see him for at least 2.5 months which means, I’m going to be running out of medication .. and FAST. Hopefully my new doctors will work out and I can make an easy transition. Oh, and get this. Dr. C at the Fibro & Fatigue Center treats all his patients with the same plan of action so no wonder I wasn’t getting better. I’m just really disappointed in the center when at first it gave me so much hope. Maybe I was grabbing at the last rope I thought was out there, I don’t know. I just have to find what works and I know it’s going to be a frustrating battle and my patience will tested big time, well, sort of like now.

So with everything going on, having some severe medication changes, getting sick, being way over-emotional, fighting with the hubby its affected my performance at work and I only hope that they will find some sort of empathy and be patient with me too. The only thing that hasn’t gone away is the pain, so I’m still dealing with that. It’s hard for people to understand because I look well but everything under my skin, including my digestion issues and IBS is a complete mess. I just need all this to come together, and the sooner the better. Not only for me, work, but for family friends and everyone else that is involved. I’m trying my hardest to hang in there, I really am.

Went to see “Hotel for Dogs” tonight. It was one of those cheesy Disney stories, but it was pretty good. Nice and light and funny. I knew the ending as soon as it began but .. I thought it was pretty good. Good, no, maybe just cute. It was cute.

I gotta go to bed now, I’m tired.

So I’m watching “Trauma: Life in the ER” .. This guy comes in after getting beat up in a bar he frequents often. His face is all bloody, he looks like death warmed up to luke warm. He’s a self admitted raging alcoholic. They call in a social worker and she starts to explain to him about this option of going to a treatment center. Dude starts crying. Social Worker says:

Sir, can you please tell me why you are crying. Sir? SIR? SIR?!?!?

She’s practically yelling at him to give her an answer. I mean, gah. Let the guy cry it off a little. It’s probably not something he’s done for a while, let him accept the fact that he’s all fucked up sitting on a bed in a hospital gown with his bare ass hanging out for passer-by’s to see getting yelled at by a social worker yelling if he wants to go to treatment. Why do you THINK he’s crying lady! Gah!

I went to the Cobb County Toyota Dealership today. Well, I did the right thing and I called first and told them that my car has been dead every morning this week, what should I do? They said:

“Bring it on in now if you can, your under warranty and we’ll just switch out your battery. It probably sat on the lot for too long or something. Should only take around 25 minutes.”

Hey, the dealership is right around the corner from work, sounds great right? I’ll just hurry and go before my meeting in an hour.

So I got it in there and they took it back and told me to sit in the lobby. If I don’t have a clock visible I tend to loose track of it, but I did win 4 games of sudoku. I look at my phone and an hour had past. My meeting had started. I was still sitting in the bloody lobby at the Toyota Dealership! I go to the front desk and ask them, where is my car? Lady can’t find any information about my car. She’s walking to the back and she tells me that they are checking my breaks right now. I’m looking at her puzzled and I walk back to where they are fixing all the Toyota’s and saw mine all the way in the back with the wheels off, the doors off, way up high on those .. those .. you know, LIFTER THINGS and I see a tech come around the corner. I asked him what the hell he was doing with my car all taken apart??? This was supposed to be a 25 minute battery change. Ummm .. ummmmm. Some old guy comes around the corner, tells me they will get it put back together and put me on my way. On my way was an hour ago at this point. I had already been at the dealership for an hour and a half. I walk back to the lobby in tears, thinking the worst about this meeting I’m supposed to be at, my actual job since I told everyone I’d be back in 30 minutes, and my car was in a million pieces. Ugh. In another 15 minutes they had my car out to me. How many screws and bolts did they forgot to put on getting it together so fast? When I opened my door the first thing was the panels on the drivers side were all hanging down and the panel on the bottom was completely gone. There was a nice greasy black stain right on the passengers seat. Still in tears the guy that drove my car out said:

Um, well, we don’t have clips to fix that so you’ll have to come back. I’m not sure about your battery …

Fine, Fine. Give me my brand fucking new car where the inside is in pieces and the seat looks like something my Dad would have done before taking his shower after being in the shop all day.

I had to call the cops on my neighbors again due the blaring bass music vibrating my house.

My narcolepsy is getting worse. At work if I’m in the middle of working on a document I just wake up with my finger hitting on some key filling up the page. Often times I have to us only one eye to take away the double vision. The new med they want to try on me can’t be given through the pharmacist or the hospitals, it can only be gotten from the manufacturer itself. (www.xyremcom)

I finally called the FFC center to see what was going on with that. I found out that they hadn’t even faxed over the paper over. This is the second time in as many months they have failed to fax in my meds. It’s rather surprising, because this place has a good reputation. When I told Dr. C about what happened last month he was just so visibility upset about it I thought he was going to spring a leak. I wonder what he’s going say this time and how upset he might be. The strange thing is that the staff at the FFC has been excellent so far, much better than I’ve ever experienced…so where are these problems coming from?

It’s not like I want to get anyone fired. The nurses I do have are great and kind with excellent bedside manner.

But this is my life we’re talking about. I’m falling asleep playing Rock Band with my husband, I’m falling asleep at work. Which is not good when my boss or the bigger bosses walk by. My confusion level during these times make me feel like a doorknob. I randomly fall asleep when I’m concentrating on something pretty hard.

I will call tomorrow anyway to see if that paperwork has been faxed and I’m going to request that my doctor call me when he has a minute.

As for the other Fibromyalgia symptoms, I have to have another sleep study done due to my slight sleep apnea so I get to wear one of those scary masks at night. Oh boy, eh? I wonder if the face thing will amplify my snoring. I feel bad for my hubby. He went to pick up my meds that were due for a refill. I couldn’t do any of this without him.

I’m just so frustrated. I’m using the cane all the time now and I’ve been enquiring about getting a power chair (I first called the Scooter Store place that you see those commercials for but my new insurance doesn’t cover it. What’s next in the whole meds scene? More to add to the arsenal or less to make me less sane.

And where do I go for all these questions? All the support groups I have found are so pessimistic, where are the people with Fibromyalgia and Chronic Fatigue living happy normal lives? Where are their voices? I’ve heard they exist, but where?

If I hear one more person tell me it’s going to be ok. I’m going to eat them for dinner.