I don’t know what to do. I love my job 99% of the time. I live and breath my job. But then when your boss changes it goes from old boss saying “I couldn’t do it without you” to new boss saying “My way or the highway, I will not accept anything less” so everything I have learned in my job I’m having to unlearn in accordance to new boss.

New boss has never been in tech support. Fort the last 5 years I’ve lived and breathed tech support. I actually planned on living out my career here. Now I’m working harder not only here but at home and when I get a huge project done to help my team it’s shot down and I get 10 canines.

I’ve never been so confused.

Finally, I was able fall asleep and it took a full 24 hours for my health bar to regain its full strength. The bad thing about this is it’s 3:30am so there isn’t much luck going back to sleep after I’ve already woken up. I tried, didn’t work.

I did however take another fall in the bathroom. I think my shoes were still wet from being out on the back porch trying to get my dog to come back inside I landed square on my right knee. For people with Fibro, falling has to be the worst. It’s not just a fall. It’s a total body flare up so not only does my knee hurt but my body feels like its just been through the meat grinder. Ouch.

My plan is to work early and go see my new doctor at 1pm. I hope he helps. I’m really tired of this doctor hopping. Mom keeps telling me there is a doctor out there that will help me and after a year my 8 ball is saying that things are looking grim. I’ll keep trying. What else can I do at that point?

I’m looking forward to the 31 days to a better blog challenge.

How am I feeling? Well, I wrote a big long email to work about the situation and everything that was going on and I heard nothing back, which only means one thing. They are planning my hopefully “temporary” replacement. I have heard back from my boss and his boss however saying to take as much time as I need to get better. That was nice. I just don’t do good sitting idle so I’m going to learn something over this next week and it’s going to be amazing. I just don’t know what it’s going to be yet. Maybe I will drive into ruby and learn rails and gems.

I’m pretty certain I can make something really neat and cool with that to come back and WOW everyone with. I’ll try at least. I usually only WOW myself. WOW.

I’m digging out my ruby books now … and spending the rest of the night in programmers heaven (best time is when everyone’s asleep, like now)

You know why all this is happening? Because some fuckhead felt like coming to work sick (I know of one of them specifically who had bronchitis and girl, you and me are going to have words because I heard at least 5 people tell you to go home because they didn’t want to get sick) because she didn’t want to lose her job. Not once did she think, oh wait, we have people in the office who are on remission from cancer, or people with auto-immune diseases like Fibromyalgia who are magnets to this shit. That’s not even the bad part. This shit put me in the hospital and she’s sure not paying my hospital bill. I’m fairly certain they will have to put someone in my place temporarily until I get back (as my boss promised if I had to ever take medical leave, which, I guess is a test now because my hands are tired. Completely) So because this bitch didn’t want to lose her job or whatever, I got what she had and I when I was in the ambulance on the way to the hospital overhearing the EMT say “Ah shit, she’s dropped below 70, upgrade this to critical, stay with me now Jenny, come on Jenny, stay with me Jenny .. can you see me … grab my hand Jenny I was remembering her selfish little words. Pffttt, I don’t want to lose job. I was hoping not to die at that point.

So with my permanent lung damage (like I need more) I’m going to have to call up my boss tomorrow and explain to him that, yes I could do the job. I’d be in right this very fucking second doing it if they would make sure that sick people did NOT FUCKING COME TO WORK. Now I have hospitals bills, I’m strapped to oxygen to keep me alive seeing this promotion slip out of my fingers so fucking fast I didn’t even get to taste victory yet. I’m sooooooooo mad. I’m soooooooooooo pisssed. I had zero choice in this. ZERO.

After the 13th, if they let me work from home I could do that but it’s hard to manage a team that you don’t even see every day. One other person’s wrong choice cost me this. I’m not about revenge, I’m not about payback, all that is bullshit. I am about bringing into prospective what people might have missed tho.

Anyway, my doctors card and me. The good news is I lost 3 pounds past my 50 lbs for the first of the year. So, thats 53 pounds in 59 days. There it is, this is almost a death sentence to me. Going to work actually MAKES me feel better so it’s going to be a long 10 days of getting cabin feather. I do have 5 portable tanks with me but just one of those portal tanks only lasts 4 hours. As for the poor me, I’m getting daily nose bleeds from a dry noise.

The only good thing about the whole experience was I got to walk talk and mingle with this harp player who comes and just plays healing music to everyone who wanted to listen. My roommates thought Jerry Springer was more interesting.

I’m really disappointed in my doctor at the Fibro & Fatigue Center. I found out that he read some of my labs wrong (have I mentioned this yet? I don’t remember) and so I’m off most of the medication he had me on. Well, I’m off at least 7/8ths of the medication I was before and I’m already noticing a change and I’m already noticing that I am feeling better. Plus, the nurses at the Fibro & Fatigue center here in Atlanta have been dropping the ball left and right. My doctor wanted to see every 3-4 weeks and he’s booked solid for the next 3 weeks which means I won’t see him for at least 2.5 months which means, I’m going to be running out of medication .. and FAST. Hopefully my new doctors will work out and I can make an easy transition. Oh, and get this. Dr. C at the Fibro & Fatigue Center treats all his patients with the same plan of action so no wonder I wasn’t getting better. I’m just really disappointed in the center when at first it gave me so much hope. Maybe I was grabbing at the last rope I thought was out there, I don’t know. I just have to find what works and I know it’s going to be a frustrating battle and my patience will tested big time, well, sort of like now.

So with everything going on, having some severe medication changes, getting sick, being way over-emotional, fighting with the hubby its affected my performance at work and I only hope that they will find some sort of empathy and be patient with me too. The only thing that hasn’t gone away is the pain, so I’m still dealing with that. It’s hard for people to understand because I look well but everything under my skin, including my digestion issues and IBS is a complete mess. I just need all this to come together, and the sooner the better. Not only for me, work, but for family friends and everyone else that is involved. I’m trying my hardest to hang in there, I really am.

Went to see “Hotel for Dogs” tonight. It was one of those cheesy Disney stories, but it was pretty good. Nice and light and funny. I knew the ending as soon as it began but .. I thought it was pretty good. Good, no, maybe just cute. It was cute.

I gotta go to bed now, I’m tired.

I just got off the phone with SarahJean and oh it was so good to hear her voice. Thank goodness to the internet. I’ve missed everyone so much but I didn’t realize just how MUCH I’ve missed everyone until I’ve had a chance to talk to all these people just like we picked up where we left off in a way. This is the pick me up I’ve been needing and wanting. There’s a reason for everything, definitely.

In other news, there was a gas leak at work yesterday so we were all sent home to work from home. I got all cuddled in bed taking calls and working from my laptop. I got more done yesterday than I have all week. Today they had the heat up past 80 due to the doors being open all night to air out the building and it got stuck at 80 until 3/4 of the day was over and we’re all sitting there in our own sweat. Finally they fixed the temp and the rest of the day was comfortable.

With all these people I’m talking to, they are all asking about my husband and if he is coming. I wish more than anything he could, but he will eventually. It was such short notice and he couldn’t get the time off. I am telling them how wonderful he is and how lucky I am to have him. He’s my first lucky break.

Ohhhhh excitement feels good.

I had 5 scheduled interviews today, and 4 people that actually showed up. The third guy we interviewed actually FARTED in the middle of his interview. He got really nervous after that. I was so shocked I couldn’t speak for a few minutes. I mean, who farts in an interview? Weird.

The last guy we talked to I liked a lot. Hopefully we have better luck tomorrow.

I got an iron IV this morning. I thought for sure it would make me sick but it didn’t. I actually felt pretty good today. It was one of my “good days” ..

Finally heard back from the folks at Xyrem. I’ll be calling them tomorrow to see what all I need to do to get my meds.

Sleep study is set for Sunday night. I’ll be fitted with a c-pap for the sleep apnea. Doesn’t that sound like fun. I love having devices on my face for a good nights sleep. At least I will be going OUT of Atlanta in the morning instead of IN or I’d be stuck in traffic forever.

I found the coolest thing ever today! A cane that looks just like House’s cane (you know, House MD). I really want to get that.

Ok, I’m hungry, and I need more coffee. I hate falling asleep all day long.

I’m already on Provigal and it doesn’t seem to be doing much for me at all lately. Just tonight I kept falling asleep writing out this blog entry and it’s taken me all day long. I hate it. My doc wants to put m on xyrem. We’ll see. Dr. C made a surprise call to me on Friday himself. Usually if he needs to tell patients something he asks the nurses to do the phone call.

He called me 15 minutes after he received my labs. Sigh.

Mostly my triglycerides are over 500 which is stroke level. Oh great, ya know? JUST what I was needing to hear, especially since that way was one of my good days with minimal pain. When I would ask questions he said he’d talk to me about the rest of my labs on my appointment which is on the 29th. I finally made him give in enough to tell me that my labs were 3-5 times worse than when I had them 3 months ago which means non of my meds are working. Hurray! I just have something in the back of my head that it wasn’t the only bad news he wanted to give me and that’s why he keep reassuring me that I would be there on the 29th. I’ve never missed a doctor appointment, or an IV treatment appointment, or any appointment when it comes to the Fibro & Fatigue Center

Freaked me out. I’m supposed to be on bed rest and in his words he said “don’t move unless you have no choice. Um, ya, I have ADD. I don’t know how to stop from moving especially since I’m not on my ADD pills anymore. What if he has something really bad to tell me. Then I over heard him telling my nurse (Brenda) to call in tranquilizers so help me stay calm, so it’s not like the nurses weren’t there and yup, MORE pain meds that aren’t mixed with tylenol or Ibuprofen

Then he told me any dizziness I had, whether it was sitting up or If I started to feel numb at all to call 911 and to have my husband call him.

I just can’t get it out of my head that there is some thing really wrong and he’s waiting to meet me in person when he tells me. He’s NEVER called me about my labs before, what makes this time so different and why is he calling personally, when I have an appointment in a week and a half until my next appointment. I don’t know. Now THAT has got me worried.

So, doctors orders. Don’t move. I can get a lot of WoW in .. that is if I don’t keep falling asleep everywhere I go.

Sigh. I wish this were all over Most of my friends at work don’t know about this blog, but if they will know my secret usually only reserved for those closet to me.

My eyes are closing. I think I’ll sleep right where I”m sitting.